One Breath at a Time

Going the Distance with Pulmonary Fibrosis

People living with pulmonary fibrosis and their family members are often overwhelmed and confused upon diagnosis with the disease. Finding the resources and support for both patients and caregivers can also get increasingly challenging as the disease progresses. If you have experienced this yourself, this website is for you. Our aim is to provide clear and consistent information about pulmonary fibrosis, and to help you to navigate the care pathway with greater confidence and have a better quality of life.

 

Singapore PF is developed by Rainbow Across Borders to support individuals with pulmonary fibrosis and those caring for them, including healthcare providers. It offers a wide range of resources, including disease education, information about access to treatment and support, as well as practical advice to help patients and caregivers meet their health-related needs and cope with their challenges in daily life.

 

To create Singapore PF, RAB has partnered with Action for Pulmonary Fibrosis and the European Idiopathic Pulmonary Fibrosis Related Disorders Federation, both of which already provide valuable services to pulmonary fibrosis patients, caregivers and healthcare providers in the United Kingdom and Europe respectively. Much of the information provided in Singapore PF is adapted from their websites with their kind permission. 

 

With the assistance of these key organisations, RAB is strengthening connections to resources, programmes and providers serving pulmonary fibrosis patients in Singapore, and improving communication among healthcare providers, patients and caregivers. 

 

With support from

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